A Seizure’s Lament – audio art

There is a sound that I will never forget. It’s a sound I make, but the thing is I’ve never heard it myself. That’s because when it comes out, I’m always unconscious in an epileptic fit.

Based on the accounts of those who have witnessed me, I went in search of the sound online. I sample what I found at varying speeds — speeds as low as three percent — in order to create an imagined soundtrack for my seizures.

Making this audio piece, I felt sad. So at the end of the process, I sang to it and mixed that in too. The video is from one of the jellyfish tanks at the Vancouver Aquarium.

A Seizure’s Lament was first commissioned by the 2011 Deep Wireless Festival in Toronto and aired on CBC Radio’s Living Out Loud. It later aired on CBC Radio’s Tapestry and was featured at the Third Coast Filmless Festival in Chicago and PRX’s How Sound show.


2 thoughts on “A Seizure’s Lament – audio art

  1. What an incredible account of a convulsive seizure and the thoughts and reactions of coworkers. So many people with epilepsy don’t know what their seizures look like when they loose consciousness. Don’t want to know. Good for you for looking into this and sharing your experience with others.

    The good news is your epilepsy does not define you. The response from a handful of coworkers that came to your aid is fantastic. It is indicative of their respect for your and your abilities as well as your contribution to the team and your workplace. If only more employers were that supportive.

    • Dear Tim

      How kind your thoughts are and yes, I do feel so incredibly lucky!

      Thank you. I hope we get to meet some day soon, considering you are with Epilepsy Toronto. Gratitude also for all the work you do.



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