Post-Ictal – ambient

Had a partial seizure of some kind on the subway this afternoon. It’s the first time I’ve had one in public since surgery in October 2012. And unfortunately, I was alone. No one else seemed to notice, as no one said anything. I’m glad it wasn’t grand mal. I guess the nocturnal only phase might be ending.

Anyhow, this is how I feel today.

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5 thoughts on “Post-Ictal – ambient

  1. Glad you made it home okay. Sorry to hear that the seizure took place on the subway. How did you know you had a partial seizure? Hopefully it will be a very long time before you have another.

    Stay well.


    • Hi Tim. Nice to hear from you :) Thank you for all your thoughts of kindness. So grateful. To answer your question, well, I know it wasn’t a grand mal, because if it had been that, I wouldn’t be able to remember anything and I think the folks around me would’ve noticed and called 911 or something. That’s happened a few times on public transit for me.

      Everything in front of my eyes got the sparkle and I felt such anxiety. I was so afraid. Then I couldn’t remember where I was going, but I knew I was going to meet my friend Jerry, who also has epilepsy. I was above ground in the West End, so through texting, he helped me figure out where I was, but when I got to the station where I was supposed to meet him (Runnymede), which I’ve been to many times, I couldn’t remember how to get out. I went out the opposite exit to where Jerry was and just headed to a Starbucks. Jerry came to me on the patio in front, but I found it hard to speak and just wanted to look forward. He let me calm down and all was ok in about 3 – 5 minutes. It took a while for my full ability to talk and just be normal came back. He, of course, completely understood and just remained casual about the whole thing, which I greatly appreciate.

      In the big picture, no big deal compared to grand mal. That’s for sure.

  2. I’m sorry to hear this. Take care of yourself. It’s no real surprise, I guess that the triggers/times are changing; seizures are jerks like that. You think you’ve got them locked down and then BOOM they pick a new pathway or whatever just to screw you over!

    I hope your next ride is a safe one!

    • Thank you darcil – you are so awesome right back atcha. On the other side of the coin, maybe it means my brain is really smart since it can figure out new ways to do things! Ok brain – let’s just move the focus to other activities, alright? Like music composition or writing fiction…. Lol.

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